I started and stopped this newsletter a few times over the past few months, for reasons that will become clear as you read on. Here is a breakdown of the last few months in the form of drafts from each month.
February:
I had a whole bunch of newsletter posts planned this year but I’m putting pretty much everything on hold to deal with a new reality, which is a resurgence of long covid symptoms that I thought I had entirely recovered from more than a year ago. The aperture of my day has gotten smaller and my energy is quickly soaked up by doing things like making breakfast and showering, so my extracurricular activities and my ability to structure my life are on hold. This is frustrating to write out and it’s frustrating to live through because I have so many things I want to work on and do and now I feel like my main job is eating enough food that I don’t get lightheaded.
Unlike the last time I fell into a long covid fatigue void in 2024 the world is both lacking in public health infrastructure to deal with covid but also there are more treatments and meds and understanding about long covid by medical practitioners. I’ve been invited into long covid group chats and multiple people with long covid have reached out to me to give me tips and tricks and medication suggestions and moral and emotional support. I’ve gotten suggestions on the best things to help with brain fog and lightheadedness and extreme, debilitating fatigue I’ve been experiencing.
But doctor’s appointments take too long and outside of a few long covid clinics most practitioners are not familiar with the best prescriptions.
April
What I’ve Learned on my journey back from the land of the dead:
*If you have long covid you are suddenly initiated into an underground club of radical dissidents who instantly know one another and acknowledge each other with headnods and secrets handshakes. They can telepathically sense that you are one of the Chosen and invite you to secret groupchats and text chains where you are given news of the One Drug To Rule Them All and argue about masking etiquette and complain about doctors.
*Low Dose Naltrexone is a very little-discussed drug that seemingly everyone in the chronic illness whisper network is plugged into but which many doctors have somehow still never heard of. It is as close as there is to a miracle drug for chronic fatigue syndrome (and is used for chronic pain and immune system issues stemming from inflammation.) Naltrexone in regular doses (50mg) is used for opioid withdrawal. Low Dose Naltrexone (1-4.5mg) has to be specially compounded at boutique pharmacies and is not covered by insurance. For some reason the low dose version has anti-inflammatory qualities that regular dose naltrexone does not.
*There are a bunch of over the counter supplements that help with brain fog and POTS (getting dizzy standing up) that are available over the counter. They include alpha lipoic acid and N-Acetylcysteine (NAC).
*I did not get to the point where I filed for disability. But I had no choice but to take several weeks off of work. I am a freelancer and do not have sick leave. I am fortunate that I received financial support from family, without which I would be in rent arrears and thousands of dollars in debt.
*For my birthday in April I asked my friends to bring me healing talismans to fortify me for my journey across the River Styx and back to the land of the living. They brought me: a beautiful watercolor tarot of a south asian trans woman doing a healing spell, by my friend the graphic novelist Rani Som, a doodle of a dog in a cape by my girlfriend, the graphic novelist NA, several beautiful stones, a seashell that still had sand in it, a mug that said “You’re Awesome Keep That Shit Up,” a child’s temporary tattoo.
Did they work? I don’t know. I mean objectively yes, magic is real and my friends are all sorcerers, but other than the god-like ability to transmute my body into a cosmic web of healing energy I don’t know that it did anything. Ultimately the low-dose naltrexone did melt away some of the fatigue and eased my inflammation, and by the end of the month I was slowly recovering.
May
I had enough energy to go on a dream retreat, which is a retreat where we talk about dreams, in New Lebanon. We spent some time at the dream attic of poet Bernadette Mayer, which is a large library attic in her house (her property is now called “Poetry State Forest”) filled with books on dreams, novels (including a great deal of Doris Lessing books, including her final sci fi sequence!), old poetry journals, books on physics and the gestation of the universe. We were told that Bernadette awoke at 3:15 A.M. every morning to write down her dreams as did some of her friends, because they heard this is when the mouth of the universe is wide open. Because I am fatigued I have trouble ascending stairs and stayed downstairs in the poetry library, where I flitted between Writer Sollers by Roland Barthes, the works of Lucretius and sometime else I don’t remember.
The next night at my friend’s house nearby, I browsed an art book called Memory, a collection of hundreds of photographs and journal entries that Bernadette took in the month of July 1971. I love that this is a liveblog before there were liveblogs and seeing such a tiny sliver of time rendered as something so sprawling and infinite vindicated something I often think about time: that the reason we think it goes so fast is because we don’t, or can’t take the time to render its events in minutiae. To really reflect on what what you did in a single month this year would likely unload more revelation and adventure than you are prepared to handle. (There is a Borges short story I often think of about this, called Funes the Memorious, about a man who remembers too much and can no longer function) Later, we watched a dream related episode of Muppet Babies and accidentally watched the wrong episode of Northern Exposure (Or “NoSpo” as someone I know calls it). We meant to watch Mr. Sandman, about the town sharing their dreams, but watched an episode about the pregnant Shelly meeting her time-traveling future daughter.
**
Right now I’m more or less functional; I went from the absolute worst health of my life, where even walking to the kitchen was too exhausting to handle, where I was not able to write more than one sentence a day and couldn’t focus enough to watch t.v. or read for too long, to being at 80% of my normal energy levels. I realize that my health is going to be up and down for an unknown amount of time and that my body is a haunted house with trap doors that will keep springing at inopportune moments until the roof collapses. I am not always at peace with this but at the moment I am enjoying the ability to think and move and talk to people, do the work I care about and try to plot the future.
If you’re interested in reading more thoughtful explorations of long covid, check out my friend Zehra’s newsletter The Hot and the Disabled.
Books I’m Reading:
Okay I’m having the weird experience of every book I’ve read in the past few months has been great.
Oreo by Fran Ross – I recommend everyone read this cult classic 1971 novel, a dense, reference-heavy and at times obtuse satire about a young Jewish Black girl from Philly trying to find her father in New York City. It has some of the most bonkers sentences I have read in a novel. Actually every other sentence is the most bonkers sentence I’ve read in a novel and the punchline per page ratio is out of control. I definitely did not get all of the references (Yiddish slang, late 60’s pop culture, lots of call-backs) so I will need an annotated edition or a book group for a re-read of this at some point.
The God of Small Things by Arundhati Roy - I’m dumb because I’ve never read this before and literally did not know that this book is about kerala or malayalis or caste and class anxiety or casteist communists and casteist malayali mar thoma christians, all things i am interested in as a malayali raised in a mar thoma christian community that i have not been part of since i was a teenager but have no ill will toward because i’m very polite. I’ve read most of Arundhati Roy’s nonfiction and had just never picked this up. It is embarrassing to make it to middle age (sorry to readers who mistakenly thought I was a youth) and not know there’s a booker prize winning book about your people that has been in plain sight your whole life.
The Autobiography of Angela Davis by Angela Davis > also embarrassed i never read this before, it’s compelling and so informative about the context of Black radicalism and the political moment of the 1960s and 1970s, the urgency of that moment, the disaster that was Jonathan Jackson and George Jackson’s murders and Davis’ arrest. Everyone should read this book along with Assata’s autobiography.
Fire in Every Direction by Tareq Beconi > Loved this! There are a lot of memoirs where it’s not totally clear that the book should exist or if the author really had a story to tell or if they just wanted to add “memoir” to their resume. This book definitely has a beautiful story to tell, about young queer feelings, the queerness that pervades ostensibly heterosexual friendships and lifelong shadow that broken friendships leave.
Here Where We Live Is Our Country by Molly Crabapple > A vital counterhistory of antizionist Jews fighting antisemitism in the early to mid twentieth century. It’s the story of the Russian and Polish Jews during both Russian revolutions (1905 and 1917), the Great War and World War II from the perspective of the Jewish Labor Bund, which was founded at the same time as the much more well-funded Zionist movement and found itself both morally opposed and sometimes in turf wars with Zionists. The Labor Bund were anti-nationalist and anti-racist, viewing zionism as morally flawed and a recipe for perpetual war. They saw, correctly, that a Jewish supremacist state in Palestine could only come at the expense of the indigenous Palestinians. The Bund was effective: they organized Russian Jews in Odessa during a pogrom during the 1905 revolution and helped organize Polish Jews in the Warsaw ghetto uprising during WWII. I’ve read so many books about Palestine over the past two and a half years and this is the first one about a historically-grounded anti-zionist Jewish perspective. (I’m also looking forward to Antizionism: A Jewish History by Benjamin Moser, which comes out later this year.)
Music I’m listening to
Maryam Saleh - Syrr
Kehlani - Kehlani
Actress/ Suzanne Ciani - Concréte Waves
Rosa Pistola - Incorregible
Squarepusher - Komerkonzert
Laurel Halo - Midnight Zone soundtrack
sunn O))) - SUNN O)))
Thundercat - Distracted
OHYung - IOWA
Jeff Parker - Happy Today
Essays I’ve Been Reading:
Muck and Its Entanglements - John Berger’s 1989 meditation on the nature of shit and his annual tradition of cleaning the family outhouse. In Berger’s reading shit occupies something between death - the unavoidable inhuman thing we avoid - and life, fertilizer from which life sprouts.
talk to you later
R.






