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A Chair, Some Wheels and an Existential Crisis
I've spent twenty-five years trying not to need a wheelchair. Today, one arrives. My feelings on the subject remain complicated.
Jun 16
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Flare and Flair
22
26
3
I Was Intelligent Before I Became Ill
Chronic illness didn't make me less intelligent. It just made other people less likely to believe me.
Jun 9
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61
29
7
Gold Star Disabled Person
On being praised for endurance instead of supported.
Jun 2
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46
28
20
I Didn’t Become Healthier. I Became More Acceptable.
On chronic illness, weight loss, and the exhausting performance of deserving care.
May 26
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11
7
6
My Husband, Not My Carer
25 years. Chronic illness. Three kids. Rough patches. Michelin stars. And somehow, we still choose each other anyway.
May 19
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5
6
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Love Languages, Rewritten
What chronic illness taught me about friendship, compromise and the people who make life easier to carry.
May 12
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15
2
5
I Chose This (But Let’s Not Pretend It’s Easy)
Ambition, exhaustion, and the life I’ve edited to make it possible.
May 5
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7
2
6
If It Hurts, It’s Not Coming
Looking good shouldn’t come with a side of pain. I’ve kept the standards and dropped everything that makes the day harder than it needs to be.
Apr 28
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7
5
The Aftermath
A good night out isn’t free. I just don’t pay for it upfront. This is what the aftermath actually looks like.
Apr 21
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10
4
6
The 30% Battery Travel Guide
Travel with chronic illness isn’t effortless. It’s planning, pacing and trade-offs. Vienna, flares and all, and why I still book the next trip anyway.
Apr 14
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9
6
4
A Day in Spoons (Revisited)
A day that looks fairly normal from the outside. A constant negotiation of what I can do, what I want to do, and what it will cost.
Apr 7
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8
4
The Myth of Effortless Women
Effortless is the goal. Trying too hard is the crime. Women are expected to achieve everything while pretending none of it required effort.
Mar 31
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4
5
The 30% Life
Selective attendance, low-energy luxury and building a beautiful life at 30% battery.
Mar 24
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18
11
Iconic, Considering
Your survival rate for tough days is 100%. Chronic illness keeps changing the rules. I’m still here. Iconic, considering.
Mar 17
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4
14
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Flare and Flair
Real talk for the ambitious-but-exhausted: chronic illness, burnout, and still showing up.
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